I stopped taking my seizure meds for a few weeks.
When I was living with my ex, going off the meds resulted in seizures within the next few days. I mean grand mal, unconscious for a few minutes and post octal phase where I have zero idea what is going on (one of the most terrifying feelings you can have honestly) I’ve been living on my own for a few years now, and gradually halfed my dose for financial reasons.
For the past <month I’ve been entirely off.
Maybe this is weird. But at one point there was a few days where I had left my meds somewhere else after staying elsewhere a few days, and was worried about driving, and he said: “don’t worry, you aren’t going to have a seizure.”
You must log in or # to comment.
Not like you’re thinking, and that one phrase means nothing. Partners sometimes just say stupid shit meant to be reassuring.
Otherwise, sure, by knowing the triggers or poisoning you.
You should talk to your doctor… And tell them you aren’t taking your meds.
Not offering medical advise, just wanted to mention that some medications take time to build up to full effectiveness, and take time to lose that amount of effectiveness.
So it may take weeks of consistent use to work as intended, and if reducing the dose, it may take weeks to be vulnerable to what the medication is treating.
Sure you can, if you know their trigger and you’re able to produce that trigger. Taking someone’s meds away could almost certainly cause a seizure.
As a fellow epileptic… please try to afford your meds in some way or form. I’m sure you know this already but as a reminder, the more seizures you have, the more susceptible you are to having a seizure. Please take you meds ❤️
Isn’t it possible for epilepsie to be induced by strobe lights? And that is a type of seizure, right? So I would imagine other types of seizures could also have triggers. Definitely not a doctor though, so I might be completely mistaken.
For some people but it’s very rare. My great uncle had photosensitivity epilepsy and when he was pissed at us he’d turn his TV on to a channel that only produced static and he’d stare at it to trigger seizures.
Wow… That’s some Twilight Zone stuff. I’m sorry.
Depending on the individual and severity, yeah. I have a sibling who is fine with flashing lights up to a rather high point, but another friend who also has this is much more vulnerable to it, even flashing lights in a relatively small section of the screen (sudden lights in a dark environment in the background, for example, while their character sits in a lit area) while playing a game.
Not a Doctor, take this for what it’s worth
But my understanding is that, depending on the type of seizure disorder and a whole host of other factors, there’s a lot of things that can potentially trigger seizures
Flashing lights are a classic example, but also smells, temperature, stress, diet, hormones, drug/alcohol use or withdrawal, fever, lack of sleep, etc.
Also you said that you gradually halved your dose since then, that might also be a factor. Lets say you were on 100mg before and 50 now. When your body was acclimated to 100mg, it was probably a bigger shock to your system to go without than it is now that your body is only used to 50, obviously 0 to 100 is a bigger difference than 0 to 50.
My knowledge is limited, but I recall hearing that more seizures are caused by smells than flashing lights. Based off that single fact, perhaps the thing that was triggering you isn’t present anymore. Be that person, perfume, or otherwise.
Oh fuck…I’m not knowledgeable to know. I’m not a doctor, so take everything I say with a whole salt shaker…
…but it kind of sounds like your ex might have been a monster.
deleted by creator
My friend got a sign from God that he shouldn’t go to church. He didn’t often go to church anyways, but his parents forced him on christmas. But not a minute after being in he collapsed on the ground with seizures.
Some might say it was the stuffy air in a small hall with hundreds of people and maybe bright lights after coming in from the dark winter evening. But we think it was a message from God.
I have grand mal and complex partial seizures. When I have the partial seizures I swear I’m getting a message from somewhere or that I can see the future… then a grand mal happens sometime after. Your friend might’ve had a different type of seizure that led to the grand mal happening at church.
I remember one time I had about 50 complex partial seizures in one day and I was convinced I was seeing the future in my dreams. They made me so tired that I just laid down for a nap. The second I closed my eyes I started having a grand mal. I didn’t even know I had epilepsy on that day lol, I was driving around my car and everything.
